op.jpg (1569 bytes)
square3.jpg (440 bytes) A CONSPIRACY OF SILENCE

The Hindu

When a minister died of a much-dreaded illness recently, an opportunity was missed to highlight a major health problem which affects millions of people every year. The establishment  failed, says ANIL AGARWAL, refusing even to acknowledge the seriousness of the issue. As a survivor of a rare form of leukaemia and as a noted environmentalist, he details the trauma of dealing with an abysmal lack of professionalism in the medical and health education systems, and the menace of pollution as a carcinogen.

I am not just angry but livid with the political 24 Sept 2000 system and the media. Our "capable" politicians did some public breast beating on young Kumaramangalam’s untimely death and the media reported this ritual without any thought.The Minister had a form of blood cancer called leukaemia.Having suffered from another form of blood cancer called lymphoma-three times in just six years, and thanks to God I am still alive, having achieved some kind of record, I guess-I have some idea of what it takes to deal with cancer and, as an environmentalist, I have a deep interest in the role of pollution, lifestyles and diet in its causation. But there was not one substantive political statement or media report on how to deal with this horrifying disease on which there is nothing but a conspiracy of silence from the Government.

Unable to deal with traditional diseases like diarrhoea and malaria, the Ministry of Health has been acting like an ostrich, refusing even to acknowledge the seriousness of the problem. But when a young minister dies, for the media, he provides an excellent peg for substantive reports on a major public health problem, which today affects more than a million new people every year.How could the media have missed such an opportunity?

Kumaramangalam died of leukaemia not because the private sector Apollo Hospital misdiagnosed him and the "prestigious" All India Institute of Medical Sciences (AIIMS) failed to deal with him, but because cancer treatment is extremely poor in this country even as pollution in cities like Delhi is making people more susceptible to the disease. What is great is that Cancer is a great leveller, and even important people do not escape it except, of course, ordinary people who do not get a bevy of doctors flitting around them. For a poor person, the very diagnosis of cancer is equal to death. According to Dr. Vinod Raina of AIIMS, only about 30 percent of the patients diagnosed with Cancer undergo treatment because of the cost and many drop out halfway having run out of money. The average cost of treatment of cancer can be some Rs.2-3 lakhs and that is when there are no major complications. Parliament was told recently that the Government has spent Rs.6 crores on the treatment of former Prime Minister. Mr.V.P.Singh.

Cancer treatment is becoming better- in the United States, survival rates for many cancer is now higher than 50 percent - but, unfortunately, the cost of treatment is also going up. For example, an infusion of monoclonal antibodies of a bone marrow transplant is now recommended for various cancers, which greatly increases the chances of success. Monoclonal antibodies, for instance, can specifically target cancer cells but one infusion can cost as much as Rs. One lakh and a patient may have to take several.

So what do we do in India? First, we have to take the preventive route, especially because we have far too many poor people who cannot afford treatment. Unless, of course, our politicians do not mind poor people dying despite all their pro-poor rhetoric. This means controlling pollution- a gigantic task for the Government: - and educating people to have better diets and improve their lifestyles. For instance, awareness of the risks of smoking has cut lung cancer rates dramatically in the U.S. But, in India, there is very little health education; fruits, vegetables and dairy products are full of pesticides; and, pollution of air, water and soil is growing by leaps and bounds. The Government does not even collect cancer data properly or regularly and make it known to the public. Considered to be a secret by the Government, we had to ferret out the data with the help of a doctor.

The latest data on cancer incidence is available for 1991 only and that too only from hospitals in five metros and one rural area. But even the data available is very worrying.

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